My last surgeon appt. was overwhelming to say the least. They had to use silver nitrate sticks to burn down the open flesh to promote healing, my nerves are so sensitive right now while they are growing back, so it didn't feel good. It was pretty gross, it smoked up and you could smell it. YUCK! It burned, but luckily I'm feeling much better now. The charred skin came off with my bandage change. I'm hoping now it won't be long before its completely closed. They renewed my morphine and delaudid, and upped my nerve blocker (neurotin) to 600mg 3 times a day which I need because my nerves are screaming constantly but the meds just knock me out. She said I will hopefully adjust to them, so I guess in the meantime, I'll just be a zombie. We also planned my next surgery which will be to repair the skin under my left arm that healed wrong with my last surgery and also to remove my left ear lobe and reconstruct a new one by doing a skin graft. I had surgery on my ear in August but when she got in the disease was through and through, since I didn't sign consent for her to remove it and do a skin graft she just sewed it back up, and it looks all crazy, it healed down my neck and is preventing range of motion in my neck. The next surgery will be the end of June beginning of July. I should have a date in a few weeks. After this corrective surgery I will be taking a long break, I think. I need a long break, but it depends on how this disease continues to invade my body.
I did a radio interview about HS for a Australian radio show. It airs on June 28th and I'll have a link to it online afterwards. I think the interview went well, I hope others are pleased with how I depicted this disease. I will be recording again tonight for the show, she asked me to read a letter I wrote years ago, so that will be nice too.
Nothing new to update. I'm healing, slowly but surely!
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