Been awhile.....

Haven't done a update is quite some time, so here it goes.......

First things first, I'm thrilled that my twin sis is prego with twins. A boy and a girl! I'm beyond thrilled, as being a Aunt is the best gift I've ever received. Spoiling my nieces and nephews is going to be even more expensive now with 5! :) She is due in Jan so prayers please!

My hidradenitis is a pain as usual. I just got medicare so a lot of doors are now open medically so I'll have more options to explore. I've put off any other surgery for now. I still need to have my arm and ear repaired, but honestly I just don't emotionally have anything left to give at the moment for this damn disease, and believe me surgery is equally emotional as it is physical. I've had an extremely difficult time lately looking at what the last surgery did to me. I really didn't think I would have such a hard time having the breast surgery, but since things didn't go as planned, any reconstruction is out of the question now, and the scars are MUCH worse than anticipated, I'm just messed up in the head. I hate having to see them everyday, most of the time I won't even look in the mirror at them. You can never truly prepare yourself for the aftermath of a surgery that takes part of being a woman away from you. So my warning to anyone considering breast surgery for their HS, think hard, I don't know if I would do it again, knowing what i know now, but in saying that, my surgery went WRONG, I had a ton of complications which left me unable to have reconstruction and with a lot more damage than a normal surgery. You just always believe that the "warnings" prior to surgery won't happen to you. They can. Other than that, I spent 6 days in the hospital last week with my HS, seems to be once every 4=6 months now I end up in the hospital for a week or so...... Never gets easier. The meds I'm taking for nerve damage have completely made my memory go. I'm seriously forgetting days, and people and events, even if I stop taking the meds my memory won't get better, seriously makes me cry. It just amazes me of how much this disease really takes from us.

I'm having gastric bypass in a couple months, doing all the pre testing and paper work process now. Should happen in Dec. I'm excited and nervous, but ready to get to a healthier me. I'm sure I'll be updating about that. :)

I wish all my HS sufferers, gentle hugs and pain free days....we need em! Prayers and love.